October 2022; 8 (5) Research ArticleOpen Access
A Remote Longitudinal Observational Study of Individuals at Genetic Risk for Parkinson Disease
Baseline Results
Stella Jensen-Roberts, Taylor L. Myers, Peggy Auinger, Paul Cannon, Helen M. Rowbotham, View ORCID ProfileDaniella Coker, Eli Chanoff, Julia Soto, View ORCID ProfileMeghan Pawlik, Katherine Amodeo, Saloni Sharma, Blanca Valdovinos, Renee Wilson, Aayush Sarkar, Michael P. McDermott, View ORCID ProfileRoy N. Alcalay, Kevin Biglan, Daniel Kinel, Caroline Tanner, Reni Winter-Evans, Erika F. Augustine, Robert G. Holloway, E. Ray Dorsey, Ruth B. Schneider
First published August 11, 2022, DOI: https://doi.org/10.1212/NXG.0000000000200008
Stella Jensen-Roberts
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
BATaylor L. Myers
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
MAPeggy Auinger
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
MSPaul Cannon
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
PhDHelen M. Rowbotham
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
BSDaniella Coker
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
MPHEli Chanoff
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
BAJulia Soto
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
BSMeghan Pawlik
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
BAKatherine Amodeo
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
MDSaloni Sharma
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
MBBSBlanca Valdovinos
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
MDRenee Wilson
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
MAAayush Sarkar
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
BSMichael P. McDermott
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
PhDRoy N. Alcalay
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
MD, MSKevin Biglan
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
MDDaniel Kinel
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
JDCaroline Tanner
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
MD, PhDReni Winter-Evans
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
BA, LSWErika F. Augustine
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
MDRobert G. Holloway
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
MD, MPHE. Ray Dorsey
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
MDRuth B. Schneider
From the Center for Health + Technology (S.J.-R., T.L.M., P.A., J.S., M.P., S.S., R.W., A.S., M.P.M., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; Department of Brain and Psychological Sciences (T.L.M.), Boston University, MA; Department of Neurology (P.A., B.V., M.P.M., K.B., D.K., E.F.A., R.G.H., E.R.D., R.B.S.), University of Rochester Medical Center, NY; 23andMe, Inc. (P.C., H.M.R., D.C., E.C.), Sunnyvale, CA; Department of Neurology (K.A.), Westchester Medical Center, Poughkeepsie, NY; USA Department of Biostatistics and Computational Biology (M.P.M.), University of Rochester Medical Center, NY; Department of Neurology (R.N.A.), Columbia University, New York; Eli Lilly and Company (K.B.), Indianapolis, IN; Weill Institute for Neurosciences (C.T.), University of California, San Francisco; Valley Oaks Health (R.W.-E.), Lafayette, IN; and Department of Neurology and Neurogenetics (E.F.A.), Kennedy Krieger Institute, Baltimore, MD.
MDA Remote Longitudinal Observational Study of Individuals at Genetic Risk for Parkinson Disease
Baseline Results
Stella Jensen-Roberts, Taylor L. Myers, Peggy Auinger, Paul Cannon, Helen M. Rowbotham, Daniella Coker, Eli Chanoff, Julia Soto, Meghan Pawlik, Katherine Amodeo, Saloni Sharma, Blanca Valdovinos, Renee Wilson, Aayush Sarkar, Michael P. McDermott, Roy N. Alcalay, Kevin Biglan, Daniel Kinel, Caroline Tanner, Reni Winter-Evans, Erika F. Augustine, Robert G. Holloway, E. Ray Dorsey, Ruth B. Schneider
Neurol Genet Oct 2022, 8 (5) e200008; DOI: 10.1212/NXG.0000000000200008
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- Figure 1 Flowchart of Study Participants
*Participants were instructed to choose all that applied. COVID-19 = coronavirus disease 2019; PD = Parkinson disease.
- Figure 2 Location of Study Participants
- Figure 3 Participant Satisfaction With Video Visits
- Figure 4 Percent Willing to Participate in PD Clinical Trials
*Responses include only individuals without self-reported PD, those with self-reported PD were not asked. PD = Parkinson disease.
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